ParCon has been a supporter and a support member of the ZSE (Center for Rare Diseases, Tuebingen/Germany) sinc 2012.
When ParCon learned of th work of the Zentrum fuer Seltene Erkrankungen (ZSE) (founded in 2002) we were enthusiastic and it was clear that we would be able to contribute to a precious and important work. We are glad to be able to support an innovative institute that walk new paths in order to provide new hope for healing.
For people with hereditary spastic spinal parlysis and for children born with the Pierre-Robin sequence (PRS) the ZSE has developed new research and therapeutic approaches.
What are rare diseases?
A disorder is rare if on average less than one person in 2000 is affected by specific symptoms.
Ca. 70 German children per year are affected by PRS
The Pierre-Robin-Sequenz is a congenital, rare deformation in the area in the face and jaw. It affects important functions of breathing, alimentation, language and auditory sense. Breathing interruptions of the small patients often represent an acute danger to life. Learn more about this project and the newly provided possibilities of healing.
So far no therapeutic options for HSP
Hereditary Spastic Spinal Paralysis (HSP) is a slowly progressing spasticity of the legs. HSP is herditary and often several family members are affected by ths rare neurogegenerative disease of the spinal cord starting during childhood or adulthood. So far no treatment options have been developed that could influence the progression of the disease.
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